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Planning for the Future

Neurological Alliance of Ireland and Irish Hospice Foundation booklet

This booklet Planning for the future Information for people who have an advancing neurological illness is for people who have an advancing neurological illness and who want to make plans for their future. It may also be useful for family, friends, carers and health professionals. It is not recommended for people who have been recently diagnosed. If you are recently diagnosed please contact HDAI for information and support.

Advanced Care Directives

An Advance Healthcare Directive, sometimes known as a 'living will', is a statement about the type and extent of medical or surgical treatment you want in the future, on the assumption that you will not be able to make that decision at the relevant time. The Citizens Information website has further information available on Advanced Care Directives

Decision Support Service

The role of the Decision Support Service (DSS) is to promote the rights and interests of people who may need support with decision-making as provided for in the Assisted Decision-Making (Capacity) Act 2015. The DSS is a new service but not currently operational. Their website provides information about this new service and when it is expected to commence. It explains how decision support arrangements will be legally recognised for people who need support to make certain decisions. For further information see: