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HealthE-RND Research Study


HealthE-RND aims to develop an eHealth platform to improve quality of life in individuals affected by rare diseases. The project will initially focus on people living with Huntington's Disease and their families.

By offering online help we might be able to achieve our aspiration: that everyone should have access to guidance and care.

HealthE-RND is funded by the EU Joint Programme – Neurodegenerative Disease Research (JPNDR). It is a European collaboration between partners from Czech Republic, Germany, Ireland, Italy, the Netherlands and the United Kingdom.

Professor Jennifer Hoblyn, Clinical Lead at Bloomfield Health Services and Associate Professor at Trinity College Dublin School of Medicine is leading the research study in Ireland. Please see an invitation to participate here: Research Invitation

If you think that participating in this project would be of interest to you or your partner, or if you have further queries please contact: 

Professor Jennifer Hoblyn,  Email:,   Ph:(01) 495 0021

Emer O’Malley (Research Assistant), Email Ph: +353 89 2677844




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