May is Huntington’s disease Awareness Month. Each year the international Huntington's community comes together with the shared aim of increasing awareness and understanding of Huntington’s Disease.

In 2021 the national organisations that support people impacted by Huntington’s disease across Ireland, England and Wales, Northern Ireland and Scotland, joined together as the Huntington’s Disease Alliance UK and Ireland. Family members from each region shared their stories and contributions in the collective ‘Family Matters’ campaign so that together we raised awareness for the thousands of people impacted by Huntington’s disease across UK and Ireland.

The Family Matters campaign won the Charitable Campaign of the Year Award at the Communiqué Awards 2022. in addition to Best Campaign at the 2022 Gene People Awards. 

You can find out more about the Family Matters campaign a below:

Increasing awareness of HD and the specific issues families face will strengthen our voice in advocating for positive change. 

• Family Matters Campaign
• Light It Up 4 HD
• Take part, donate or support our fundraising events to help raise funds for our work

• Launch of a campaign website
• The Living History project
• Stories and short films featuring interviews with Huntington's disease families
• Surveys to gain important data from the Huntington's community
• Ireland Specific Survey Results 
• A large social media campaign
• Sharing information with decision-makers
• Celebrity ambassadors
• Raising awareness by sharing information with the press