Huntington's Disease Association of Ireland uses cookies to give you the best experience on our websites. By using this site you agree to our use of cookies as described in this Privacy Policy. Click here to remove this message.

Share Your View

HDAI is advocating for a new specialist service for HD-affected families. We want the service to provide specialist multi-disciplinary care, support, and advice. HDAI is keen to influence how the service develops and ensure HD families have a voice in the process. In February 2023 we conducted a survey with families about their current experience of health and social care services.

Here is the Survey Report:  Too Many Barriers, Too Little Help: The Experience of People with HD and Their Families

Thanks you to all who participated.

In This Section

Tags