Share Your View

HDAI is advocating for a new specialist service for HD-affected families. We want the service to provide specialist multi-disciplinary care, support, and advice. HDAI is keen to influence how the service develops and ensure HD families have a voice in the process. In February 2023 we conducted a survey with families about their current experience of health and social care services.

Here is the Survey Report:  Too Many Barriers, Too Little Help: The Experience of People with HD and Their Families

Thank you to all who participated in this survey and to the HSE for providing funding.