Governance
Objectives and Constitution
Huntington's Disease Association of Ireland (HDAI) was incorporated in 1998 and is registered as a charitable company; Registered Charity CHY 10130, Charities Regulatory Authority (CRA) 20025656.
HDAI is established is to promote purposes of benefit to people impacted by Huntington’s Disease (HD) in a manner that is exclusively charitable in accordance with Irish law, in particular to:
- exchange and disseminate information relating to Huntington's Disease;
- provide support for individuals, families and carers who are impacted by HD;
- co-operate with the medical, caring, social and scientific professions in the management of HD.
To view HDAI's Mission, Vision and Values Click here
To view HDAI’s Constitution Click here
Finance and Reporting
HDAI's service is financed through statutory sector grants and the generosity of members and friends who fundraise and donate to the charity. Audited financial statements are produced annually.
- HDAI Reports and Financial Statements 2022
- HDAI Reports and Financial Statements 2021
- HDAI Reports and Financial Statements 2020
- HDAI Reports and Financial Statements 2019
- HDAI Reports and Financial Statements 2018
- HDAI Reports and Financial Statements 2017
- HDAI Reports and Financial Statements 2016
- HDAI Reports and financial Statements 2015
- HDAI Reports and Financial Statements 2014
- HDAI Reports and Financial Statements 2013
Policies
HDAI aims to provide information and support to people impacted by HD nationwide. It is our goal to ensure that the services we provide are of the best possible quality. HDAI welcome feedback from service users, carers, family members or health and social care professionals and the HD community about the services we provide. If our Information and Support service is not operating as well as it should, HDAI is committed to putting right any wrong.
HDAI has a No Tolerance approach to any form of abuse or harm towards children and vulnerable adults.
- HDAI Child Safeguarding Statement
- Child Safeguarding Policy
- Safeguarding Vulnerable Persons Protection Policy
- Safeguarding HSE Easy Read Leaflets
- Freedom of Information
Our Patron
Michael D Higgins, President of Ireland has been patron of HDAI since his inauguration in 2011.
Shared Interests
HDAI is a member of: The International Huntington Association and The European Huntington’s Association
National umbrella organisations include:
