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Objectives and Constitution

Huntington's Disease Association of Ireland (HDAI) was incorporated in 1998 and is registered as a charitable company; Registered Charity CHY 10130, Charities Regulatory Authority (CRA) 20025656.

HDAI is established is to promote purposes of benefit to people impacted by Huntington’s Disease (HD) in a manner that is exclusively charitable in accordance with Irish law, in particular to:

  • exchange and disseminate information relating to Huntington's Disease;
  • provide support for individuals, families and carers who are impacted by HD;
  • co-operate with the medical, caring, social and scientific professions in the management of HD.

To view HDAI's Mission, Vision and Values Click here

To view HDAI’s Constitution  Click here

Finance and Reporting

HDAI's service is financed through statutory sector grants and the generosity of members and friends who fundraise and donate to the charity. Audited financial statements are produced annually.



HDAI aims to provide information and support to people impacted by HD nationwide. It is our goal to ensure that the services we provide are of the best possible quality. HDAI welcome feedback from service users, carers, family members or health and social care professionals and the HD community about the services we provide. If our Information and Support service is not operating as well as it should, HDAI is committed to putting right any wrong.

HDAI has a No Tolerance approach to any form of abuse or harm towards children and vulnerable adults.

Our Patron

Michael D Higgins, President of Ireland has been patron of HDAI since his inauguration in 2011.

A Message from our Patron

Shared Interests

HDAI is a member of: The International Huntington Association and The European Huntington’s Association

National umbrella organisations include: