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September 24th, 2022

Members Meeting and Respite Weekend

HDAI's 2022 Members Meeting 

Save the Date:  24th September, 2022.

Please book by June 24th by emailing info@huntingtons.ie

 

Feedback on past meetings from participants included:

Patrick "A great sense of being together with people who have the same level of HD. A great sense of camaraderie with all including speaker."

K & S "Excellent weekend. An opportunity to meet people and just chat and/or get advice. The talks were great. Informing us of the bigger picture and what's happening on the medical front"

Mary & Ed "We had a ball, good food, good crowd and an interesting meeting, Thank you all’."

Prof. Mike Conneally "A wonderful weekend; ideal place for a meeting – great to see so many old friends."

Anonymous "This was my first time to attend this lovely meeting and gathering of family and friends of HD. I hope to be here again next year. A great experience to talk with and chat with people who care."

Olive "Thanks a million for opening the door for me and many others in future."

Previous Events

2019 - June Guest Speakers:  Muthu Thangaramanujam, B. Physio, Dip. ST., MISCP, Senior Physiotherapist at Bloomfield Health Services delivered an engaging talk on “Physiotherapy in HD: Strategies for Self-management”.   Anne Lennon Bird, family member and Ireland’s HD Cope representative spoke about HD Cope.

2018 - June 8th -10th, Cuisle Holiday Centre. Guest Speakers: Michaela Hammond, Research Assistant and Enroll-HD Co-ordinator, Beaumont Hospital; Maire Duff, Genetic Counsellor, Dept. of Clinical Genetics, Our Lady's Children's Hospital, Dublin and Anne Lennon Bird, Ireland HD Cope representative. See newsletter report

2017 - June 9th - 11th, Cuisle Holiday Centre. Guest Speakers: Dr Emma Yhnell, Neuroscience Institute, Cardiff University, Aine Ennis, Social Worker Bloomfield Hospital Services and Caroline, a family member impacted by HD - see newsletter report

2016 members meeting with Jimmy Pollard, International HD Speaker and author of Hurry Up and Wait -see HDAI's Q2 16 newsletter for a summary of the event.

Cuisle Closure

The Cuisle Centre, where HDAI's annual event was held, closed unexpectedly at the end of 2019.

HDAI hosted an annual Members Meeting and respite weekend for people with HD, family members and carers at the Cuisle IWA Respite Centre, Donammon, Co. Roscommon in June each year for twenty years. Regrettably the centre  closed in November 2019 despite a well supported campaign calling for it to remain open.