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EHDN and ENROLL-HD 2024
Volunteers Needed for HD Research Study
National Rare Disease Strategy Public Consultation for Patients Families Caregivers
Address to Joint Oireachtas Committee 29 May 2024
Members Meeting 2024
HD Research Day May 21
EHA Webinar Prilenia filing for EMA approval for Pridopidine March 2024
Patients Deserve Better
Charles Sabine OBE TEDx Talk
Family Voices Webinar Series
First Specialist HD Nurse Recruited
McMackin Lab Huntingtons Disease Study
HD Storyline on RTE Drama The Gone
Financial Wellbeing Service
HD Awareness Walk
Two Nurse Specialist Posts for Huntingtons Disease
Talks on Rare Diseases at South Dublin Libraries
Decision Support Service Commences
Rare Disease Day 2023
SURVEY Irish HD Affected Families Experience of Services
HD Research Study Galway
HDAI Support Meetings
Minister Rabbitte Meets Families Impacted by HD
Juvenile onset Huntingtons disease Global Registry
HDYO International Young Adult Congress
Postcard from Palm Springs 2022
EHA Support and Care Survey
Leinster House Awareness
HD feature on Rare Disease Day
Hope Newsletter
HealthE-RND Research Study
HD Family Carers Online Workshop
EHDN 2021 Virtual Meeting
Meet the HD Researchers May 31st Webinar
Sunrise And Swim For Brain Conditions
HD Family Matters
Light Up for Huntingtons Disease 2021
Family Matters Survey
Contribute to our ‘living history’ project for Huntington’s Disease Awareness Month!
GENERATION-HD1 Trial Halted
Film Release Dancing At The Vatican
The Medical Independent Features Huntingtons Disease
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Huntington's Expert Panel Webinar
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