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EHDN and ENROLL-HD 2024
Volunteers Needed for HD Research Study
National Rare Disease Strategy Public Consultation for Patients Families Caregivers
Address to Joint Oireachtas Committee 29 May 2024
Members Meeting 2024
HD Research Day May 21
EHA Webinar Prilenia filing for EMA approval for Pridopidine March 2024
Patients Deserve Better
Charles Sabine OBE TEDx Talk
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First Specialist HD Nurse Recruited
McMackin Lab Huntingtons Disease Study
HD Storyline on RTE Drama The Gone
Financial Wellbeing Service
HD Awareness Walk
Two Nurse Specialist Posts for Huntingtons Disease
Talks on Rare Diseases at South Dublin Libraries
Decision Support Service Commences
Rare Disease Day 2023
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Juvenile onset Huntingtons disease Global Registry
HDYO International Young Adult Congress
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Light Up for Huntingtons Disease 2021
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Contribute to our ‘living history’ project for Huntington’s Disease Awareness Month!
GENERATION-HD1 Trial Halted
Film Release Dancing At The Vatican
The Medical Independent Features Huntingtons Disease
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