Rare Diseases Ireland Covid-19 Survey

COVID-19 is causing significant challenges for the estimated 300,000 people living with rare diseases in Ireland. People with underlying conditions are at risk of more severe illness from COVID-19, and rare disease patients, their family members and carers are seeing their lives and care disrupted. Rare Diseases Ireland (RDI) conducted a survey over 2 weeks ending May 6th to help elucidate and understand these issues.

Rare Diseases Ireland Research Report is available here