Rare Disease Day 2021
Huntington’s Disease Association of Ireland is a member of Rare Diseases Ireland which is a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare diseases. Rare Diseases Ireland (RDI) join with other rare disease groups around the world to mark Rare Disease Day on 28th February.
This year RDI are asking people to Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Huntington’s Disease Association of Ireland will be supporting the campaign on social media etc. so please consider sharing your toastie on social media using #RareDiseaseDay and #RaiseAToastie or if you prefer you can send a picture of your toastie to us at firstname.lastname@example.org and we can share on social media. See further info below: