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Members Meeting 2025

HDAI’s 2025 Members Meeting  takes place on Saturday 24th May  at the Shearwater Hotel in Ballinasloe, Co Galway. 

Guest speakers include:

Orla Russell, Advanced Nurse Practitioner Candidate for Huntington's Disease at Beaumont Hospital, Dublin. 

Dr Emmet Byrne of ExWell, the exercise and social intervention programme for chronic disease. Dr Byrne qualified in medicine and completed specialist training in General Practice following his career as a professional rugby player for Ireland and Leinster.

Workshops include:

  • Workshop on Future Planning, a discussion for all family members, facilitated by Anne O’Shea Clarke, Sage Advocacy and Sandra Porter, Financial Wellbeing Officer
  • Carer’s Workshop for family Carers,  hosted by Liz, Family Support Officer

HDAI will provide complementary lunch and dinner. Attendance during the day is free of charge but you must reserve your place in advance.

HDAI can also cover the cost of a Saturday night stay. Please confirm by April 16th and pay a booking fee of €30 single / €50 double/twin at: Members Meeting Booking 1 night B&B May 24th

Contact us on info@huntingtons.ie for further information

 

The Hope Q2 2024 Newsletter provides a report on the 2024 meeting.

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