 |
Monthly support group meetings. |
|
Respite Care Fund. |
|
Publications include leaflets,
booklets, and fact sheets covering the many issues pertaining to HD. |
|
Loan
of specialised equipment such as the Kirton HD Chair, which would be too
expensive for the family to afford but which enhances the quality of life
of the person with HD. |
|
Members receive the quarterly newsletter containing practical advice
and research updates. |
|
Annual updates are sent
to interested professionals. |
|
A
Reference Library, which contains a substantial amount of information on
the many issues pertaining to HD is available in the HDAI office. |
|
HD ID cards are provided
to people with HD free of charge. |
|
24 hour contact for families in crisis
is available through Freefone 1800 393939.. |
|
HDAI is now on-line. This
website can be found at http://www.huntingtons.ie
and our E-mail address is hdai@indigo.ie
HDAI maintains regular contact
with world-wide discussion on HD as part of their service. |
|
HDAI represents the views
of HD families through International Huntington Association and European
Huntington Association network. |
|
HDAI represents views of
HD families nationally through umbrella organisations. |
|
Experts from around the
world have given talks at our Members meetings, which are held twice yearly. |
|
HDAI meets with health care
teams and give talks to interested personnel. |
|
HDAI highlights the needs
of our members to the statutory services and other relevant bodies. |
|
A video on HD is available
for those wishing to understand the disease. |
