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Information

Publications on HD including leaflets, booklets, and articles are available on request.

HD Handbooks

Facing Huntington's Disease : A Handbook for Families and Friends

Understanding Behaviour 

Caregivers Handbook

Physicians Guide 2nd Edition

Physicians Guide 3rd Edition Huntingtons Disease Society of America

Information for Young People Huntingtons Disease Youth Organisation

Information on Predictive Testing

Presymptomatic Testing for HD - NCMG

Predictive Testing Recommendations

Pre-symtomatic Testing, Professor Kieran Murphy Hope Annual 2009

Huntington Study Group Care Education Videos

European HD Network Clinical tips for physiotherapy and mobility

European HD Network Standards Of Care Documents

A Standard of Care for HD - who, what and why

A Standard of care for HD - a patient and family perspective

Development of physiotherapy guidance and treatment based classifications for people with HD

Physiotherapy clinical guidelines for HD

Active HD Physical Therapy and Exercise Interventions for people with HD

Nutritional management of individuals with HD

Guidelines for oral healthcare of people with HD

Management of speech, language and communications difficulties for people with HD

Development of guidelines for occupational therapy in HD

Oral Feeding in HD a guideline document for speech and language therapists

 

Neurological Alliance of Ireland and Irish Hospice Foundation booklet

This booklet Planning for the future Information for people who have an advancing neurological illness is for people who have an advancing neurological illness and who want to make plans for their future. It may also be useful for family, friends, carers and health professionals. It is not recommended for people who have been recently diagnosed. If you are recently diagnosed please contact HDAI for information and support.