Our Mission
HDAI exists to provide a unique service offering comfort, information and support to all those affected by HD
HDAI organisaton and structure
HDAI is a national voluntary organisation established by HD family members to provide consultation, information and individualised support to those diagnosed with Huntington’s Disease, their families and their health care teams. The Association was formally launched in 1985 and was incorporated in 1998. HDAI is a Registered Charity CHY 10130,financed through the generosity of foundations, the statutory sector, members and friends.
Our work involves support and information for everyone with HD and their families. Confidentiality is guaranteed. HDAI employ a Director of Information and Administration and a Development & Family Support Officer. HDAI is situated in the gate lodge of Carmichael House, North Brunswick St., Dublin 7 and is a member group of the Carmichael Centre.
Our management committee is elected by the membership at each AGM. The committee work as a group and meet at least once a month to discuss future plans for HDAI and take decisions on queries that arise. Our Annual General Meeting takes place in June in Cuisle Respite Centre, Co. Roscommon. All members are invited to attend. Audited financial statements are produced annually and are available from our office on request.
Our Patron
Mary McAleese, President of Ireland has been patron of HDAI since her inauguration in 1997. HDAI representatives have had the privilege of visiting Aras an Uachtarain on a number of occasions.
Mary McAleese, President of Ireland
A Message from our Patron
Shared Interests
HDAI is a member of: The The International Huntington Association and The European Huntington’s Association
National umbrella organisations include: