Skip to main content

Welcome

Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.

Membership

If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

HD Cafe Evening

Cafe evening for people impacted by HD See Invite

Light Up For HD - May 2016

  

HDAI join the international HD community to ask buildings to #LightItUp4HD see more. Here, buildings lighting up in purple on May 11th include: Dublin - The Mansion House, Dawson St.,  City Council Civic Offices, Wood Quay, The Generator Hostel, Smithfield and The Convention Centre, Dublin.

You can support the HD community by asking a building in your area to go purple and use  #LightItUp4HD to share a photo or selfie on social media. Email info@huntingtons.ie for more info

Research News    HD Buzz logo

Click on HD Logo for research updates.   See Dr Wild's research presentation Dublin, 2013

BBC website news reports: First gene silencing trial for HD has started

Enroll -HD www.enroll-hd.org

Dr Niall Pender and Beaumont Hospital have established an Enroll-HD site at Beaumont. This is a worldwide study for HD family members. For more info watch the Information videos below and contact the study site email : enrollhd@beaumont.ie

Enroll Study                          Nationwide 15/6/15 (8 mins in)

               

Support People with Huntington's Disease

HDAI Membership

  Membership Form 2016

Become a member of HDAI by returning the completed membership form with your contribution or email your contact details to info@huntingtons.ie and click the Easy Pay option above to donate online

HD TV Features:    

RTE TV's Morning Edition         TV3 Ireland Am

          

Check out HDAI's Facebook Page


Neurological Alliance of Ireland (NAI)- Promoting Awareness

Crisis in neurology services highlighted Report on National Survey of Neurology Services 2015

HD features in video : Ireland Gets a Red Card for Neurological Care

Support Meetings

Longford March 5th, Sept 3rd,  Dublin May 7th August 6th, November 5th, Limerick April 9th, October 15th , Cork March 19th July 2nd, October 1st, December 3rd. Contact HDAI for venue and info: 1800 393939

RESPITE Weekend and AGM June 10-12th 2016 Cuisle Roscommon

Donate or Sponsor a Fundraiser

Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser

 Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD

http://www.abc.net.au/news/stories/2010/05/13/2898852.htm?section=justin By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.