Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.
Information on HD
Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.
Annual Respite Weekend
Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.
If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly
If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.
Genetic Protection - Have Your Say - Review of Disability Act
Part 4 of the Disability Act 2005 provides safeguards for the use of information obtained from genetic testing. The provisions aim to ensure that people who may be affected by genetic disorders will not be subject to any unreasonable requirements from an employer or an insurance or mortgage provider i.e. it is an offence to ask for genetic test results. Although information on genetic testing is prohibited, information on family history is currently being requested. HDAI argue that family history is essentially genetic information and therefore people from HD families are currently subject to unreasonable requirements. Individuals with a favourable genetic test result are loaded for insurance on the basis of their family history. Please consider completing the attached Consultation Feedback Form before November 11th to call for more comprehensive genetic protection.
Raise Funds and Awareness with the PIE for HD Challenge
(100% of text goes to HDAI across most network providers. Some providers apply VAT which means a minimum of €1.63 will go to HDAI. Service Provider: LIKECHARITY. Helpline (01) 4433890)
HD Feature on RTE TV's Morning Edition
Watch Dr Wild's Research update Dublin 2013 http://www.youtube.com/watch?v=I__Up0TufEk
Neurological Alliance of Ireland (NAI)- Promoting Awareness
HD features in video : Ireland Gets a Red Card for Neurological Care
NAI Local Election Campaign - Questions to ask local candidates
Limerick Oct 18th, Dublin November 8th, Cork December 6th 2014, Mayo December 13th . Contact HDAI for venue and info
Donate or Sponsor a Fundraiser
Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser
Visit to Aras an Uachtarain
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".
Staying active delays HD
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.