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Welcome

Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.

Membership

If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

Election 2016 approaches

  Huntingtons Disease Ask

See also:

Neurological Alliance of Ireland Election Campaign

Disable Inequality Campaign

Charles Sabine interviewed on Top TV Show The Doctors

Click to view

Research News    HD Buzz logo

Click on HD Logo for research updates.   See Dr Wild's research presentation Dublin, 2013

BBC website news reports: First gene silencing trial for HD has started

Positive News from CHDI HD Therapeutics 2015

Enroll -HD www.enroll-hd.org

Dr Niall Pender and Beaumont Hospital have established an Enroll-HD site at Beaumont. This is a worldwide study for HD family members. For more info watch the Information videos below and contact the study site email : enrollhd@beaumont.ie

Enroll Study                          Nationwide 15/6/15 (8 mins in)

               

Support People with Huntington's Disease


HDAI Membership 2015 membership

HD TV Features:    

RTE TV's Morning Edition         TV3 Ireland Am

          

EHA 2015 Conference View Program

The European Huntington Association (EHA) Conference 2015 takes place from 18th to 20th September in Warsaw, Poland

Check out HDAI's Facebook Page


Neurological Alliance of Ireland (NAI)- Promoting Awareness

HD features in video : Ireland Gets a Red Card for Neurological Care

Support Meetings

Longford Oct 17th,  Dublin November 7th, Limerick Nov 21st , Cork December 5th, Mayo Dec 12th. Contact HDAI for venue and info

Donate or Sponsor a Fundraiser

Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser

 Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD

http://www.abc.net.au/news/stories/2010/05/13/2898852.htm?section=justin By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.