Welcome

Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.

Membership

If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

HD Alliance Welfare Survey

Complete the survey online:HD Alliance Survey

Cycle For HD

HD Alliance are organising a London to Paris Charity Cycle for September 2012. See more info

HD Research News from

Action for Neurology

HDAI is a member of the Neurological Alliance of Ireland, the national umbrella group for neurological charities. We will be joining a number of neurological organisations as well as people with neurological conditions from around the country in making a presentation in Leinster House on Thursday 23rd February. To make sure your local TD attends this very important meeting, go on to www.thinkingahead.ie where you can contact them directly

Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD

http://www.abc.net.au/news/stories/2010/05/13/2898852.htm?section=justin By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.

International / European Meetings

A report on the 2011 WCHD/IHA Conference is available in the Hope Q3 11 newsletter.