Skip to main content

Welcome

Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.

Membership

If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

Accentuating the positive: Olympic medalist Sarah Winckless’s strategy against Huntington’s disease

Gene Veritas shares Sarah's presentation  "Accentuating the Positive" at the 2014 Annual HD Therapeutics Conference in Palm Springs, USA in his Cure HD Blog "As an HD gene carrier, I live with the stark knowledge of the disease’s inevitability. However, scientists believe that personal enrichment and staying active and positive might very well help delay onset. And there is the very real hope of an effective treatment for Sarah, me, and the entire HD community".See  At Risk for Huntington's Disease

HD Feature on RTE TV's Morning Edition

 

Frankie and Siobhan discusses living with Huntington's Disease on Morning Focus, Clare FM

  RESEARCH NEWS - Click on the HDBuzz logo for latest research updates

Watch Dr Wild's Research update Dublin 2013 http://www.youtube.com/watch?v=I__Up0TufEk

Neurological Alliance of Ireland (NAI)- Promoting Awareness

HD features in video : Ireland Gets a Red Card for Neurological Care

NAI Local Election Campaign - Questions to ask local candidates

 http://www.nai.ie/go/campaign_centre/nai_campaigns/7-4-2014-nai-launches-campaign-for-upcoming-local-elections

Support Meetings

Dublin May 10th, Cuisle Roscommon - Carers Support Meeting Saturday 7th, Cork July 5th 2014. Contact HDAI for venue and info

Donate or Sponsor a Fundraiser

Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser

 Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD

http://www.abc.net.au/news/stories/2010/05/13/2898852.htm?section=justin By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.