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Welcome

Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.

Membership

If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

Research News    HD Buzz logo

Click on HD Logo for research updates.   See Dr Wild's research presentation Dublin, 2013

Positive News from CHDI HD Therapeutics 2015

Enroll -HD www.enroll-hd.org

Enroll-HD is a worldwide study for HD family members. The study is collecting data in an effort to improve understanding and treatment of HD. For queries on the Beaumont Hospital Enroll-HD site email : enrollhd@beaumont.ie

See the Enroll-HD feature on Nationwide 15/06/2015 (8 mins in)

Raise Funds and Awareness with the PIE for HD Challenge

To Donate for the Accept a PIE for HD Challenge -  Text PIE to 50300 to donate €2 (100% of text goes to HDAI across most network providers. Some providers apply VAT which means a minimum of €1.63 will go to HDAI. Service Provider: LIKECHARITY. Helpline (01) 4433890)

To Donate or Sponsor a HD Fundraiser

Click on MyCharity box on right

HDAI Membership 2015 membership

HD Feature on RTE TV's Morning Edition

 Click on picture to watch

EHA 2015 Conference View Program

The European Huntington Association (EHA) Conference 2015 takes place from 18th to 20th September in Warsaw, Poland

Check out HDAI's Facebook Page


Neurological Alliance of Ireland (NAI)- Promoting Awareness

HD features in video : Ireland Gets a Red Card for Neurological Care

Support Meetings

Members Meeting 5th-7th June Roscommon, Cork July 4th, Dublin August 8th, Longford TBC,  Limerick Oct 17th . Contact HDAI for venue and info

Donate or Sponsor a Fundraiser

Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser

 Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD

http://www.abc.net.au/news/stories/2010/05/13/2898852.htm?section=justin By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.