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Welcome

Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.

Membership

If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

Genetic Protection -  Review of Disability Act

Part 4 of the Disability Act 2005 provides safeguards for the use of information obtained from genetic testing. This legislation is now under review. Although information on genetic testing is prohibited, information on family history is currently being requested. HDAI argues that family history information should be treated as genetic information for the purposes of the Act , which is intended to protect against genetic discrimination. HDAI's submission to the consultation is available on request.

 Raise Funds and Awareness with the PIE for HD Challenge

To Donate for the Accept a PIE for HD Challenge -  Text PIE to 50300 to donate €2 (100% of text goes to HDAI across most network providers. Some providers apply VAT which means a minimum of €1.63 will go to HDAI. Service Provider: LIKECHARITY. Helpline (01) 4433890)

HD Feature on RTE TV's Morning Edition

 Click on picture to watch

  RESEARCH NEWS - Click on the HDBuzz logo for latest research updates

Watch Dr Wild's Research update Dublin 2013 http://www.youtube.com/watch?v=I__Up0TufEk

Order HDAI Charity Christmas cards

 HDAI Cards

Neurological Alliance of Ireland (NAI)- Promoting Awareness

HD features in video : Ireland Gets a Red Card for Neurological Care

Support Meetings

Cork December 6th 2014, Mayo December 13th . Limerick Jan 17th 2015, Dublin Feb 7th 2015. Contact HDAI for venue and info

Donate or Sponsor a Fundraiser

Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser

 Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD

http://www.abc.net.au/news/stories/2010/05/13/2898852.htm?section=justin By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.