Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.
Information on HD
Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.
Annual Respite Weekend
Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.
If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly
If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.
Click on HD Logo for research updates. See Dr Wild's research presentation Dublin, 2013
Positive News from CHDI HD Therapeutics 2015
Enroll -HD www.enroll-hd.org
Enroll-HD is a worldwide study for HD family members. The study is collecting data in an effort to improve understanding and treatment of HD. For queries on the Beaumont Hospital Enroll-HD site email : firstname.lastname@example.org
See the Enroll-HD feature on Nationwide 15/06/2015 (8 mins in)
Raise Funds and Awareness with the PIE for HD Challenge
(100% of text goes to HDAI across most network providers. Some providers apply VAT which means a minimum of €1.63 will go to HDAI. Service Provider: LIKECHARITY. Helpline (01) 4433890)
To Donate or Sponsor a HD Fundraiser
Click on MyCharity box on right
HDAI Membership 2015 membership
HD Feature on RTE TV's Morning Edition
EHA 2015 Conference View Program
The European Huntington Association (EHA) Conference 2015 takes place from 18th to 20th September in Warsaw, Poland
Check out HDAI's Facebook Page
Neurological Alliance of Ireland (NAI)- Promoting Awareness
HD features in video : Ireland Gets a Red Card for Neurological Care
Dublin August 8th, November 7th, Longford Oct 17th, Cork Oct 3rd, Limerick Nov 21st , Mayo Dec 12th. Contact HDAI for venue and info
Donate or Sponsor a Fundraiser
Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser
Visit to Aras an Uachtarain
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".
Staying active delays HD
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.