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Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.

Information on HD

Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.

Annual Respite Weekend

Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.


If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly

Create Awareness

If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.

Invitation to a HD Cafe Evening at Bloomfield

Speaker Susan O Neill, Senior Physiotherapist, Bloomfield Health Services, Rathfarnham, Co. Dublin. Tuesday 17th November 7pm. Contact HDAI for further info.

Research News    HD Buzz logo

Click on HD Logo for research updates.   See Dr Wild's research presentation Dublin, 2013

BBC website news reports: First gene silencing trial for HD has started

Positive News from CHDI HD Therapeutics 2015

Enroll -HD

Dr Niall Pender and Beaumont Hospital have established an Enroll-HD site at Beaumont. This is a worldwide study for HD family members. For more info watch the Information videos below and contact the study site email :

Enroll Study                          Nationwide 15/6/15 (8 mins in)


Support People with Huntington's Disease

Text HDAI to 50300 to Donate €2

(100% of text goes to Huntingtons Disease Association of Ireland across most network operators.Some operators apply VAT which means that a minimum of €1.63 will go to HDAI. Service Provider: LIKECHARITY. Helpline 0766805278)

PIE for HD Challenge

HDAI Membership 2015 membership

HD TV Features:    

RTE TV's Morning Edition         TV3 Ireland Am


EHA 2015 Conference View Program

The European Huntington Association (EHA) Conference 2015 takes place from 18th to 20th September in Warsaw, Poland

Check out HDAI's Facebook Page

Neurological Alliance of Ireland (NAI)- Promoting Awareness

HD features in video : Ireland Gets a Red Card for Neurological Care

Support Meetings

Longford Oct 17th,  Dublin November 7th, Limerick Nov 21st , Cork December 5th, Mayo Dec 12th. Contact HDAI for venue and info

Donate or Sponsor a Fundraiser

Click on the link on right to donate or sponsor a HD Fundraiser

 Visit to Aras an Uachtarain

President McAleese hosted HDAI in Aras an Uachtarain on April 20th 2010 to mark our 25th Anniversary. President McAleese commented:
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".

Staying active delays HD By Samantha Donovan Fri May 14, 2010
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.