Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.
Information on HD
Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.
Annual Respite Weekend
Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.
If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly
If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.
Invitation to a HD Cafe Evening at Bloomfield
Speaker Susan O Neill, Senior Physiotherapist, Bloomfield Health Services, Rathfarnham, Co. Dublin. Tuesday 17th November 7pm. Contact HDAI for further info.
Click on HD Logo for research updates. See Dr Wild's research presentation Dublin, 2013
BBC website news reports: First gene silencing trial for HD has started
Positive News from CHDI HD Therapeutics 2015
Enroll -HD www.enroll-hd.org
Dr Niall Pender and Beaumont Hospital have established an Enroll-HD site at Beaumont. This is a worldwide study for HD family members. For more info watch the Information videos below and contact the study site email : email@example.com
Enroll Study Nationwide 15/6/15 (8 mins in)
Support People with Huntington's Disease
Text HDAI to 50300 to Donate €2
(100% of text goes to Huntingtons Disease Association of Ireland across most network operators.Some operators apply VAT which means that a minimum of €1.63 will go to HDAI. Service Provider: LIKECHARITY. Helpline 0766805278)
HDAI Membership 2015 membership
HD TV Features:
RTE TV's Morning Edition TV3 Ireland Am
EHA 2015 Conference View Program
The European Huntington Association (EHA) Conference 2015 takes place from 18th to 20th September in Warsaw, Poland
Check out HDAI's Facebook Page
Neurological Alliance of Ireland (NAI)- Promoting Awareness
HD features in video : Ireland Gets a Red Card for Neurological Care
Longford Oct 17th, Dublin November 7th, Limerick Nov 21st , Cork December 5th, Mayo Dec 12th. Contact HDAI for venue and info
Donate or Sponsor a Fundraiser
Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser
Visit to Aras an Uachtarain
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".
Staying active delays HD
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.