Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.
Information on HD
Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.
Annual Respite Weekend
Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.
Membership
If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly
Create Awareness
If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.
European Month of the Brain May 2013
To mark Brain Month HDAI will host a HD Information Seminar on Saturday May 18th. Come along for an update on research and information on self management and youth support. For info see Booking Form
Click on HDBuzz logo for HD Research updates
Rare Disease Day
International Rare Disease Day Feb 28th. See video interview of people living with the impact of a rare disease.
HD article features in World of Irish Nursing and Midwifery - WIN
Support Meetings
Mayo March 9th, Cork March 23rd, Limerick April 13th, Dublin May 11th
Raising Awareness
Anne and Christy courageously discussed their battle with HD on TV3's Morning Show in August. To see their feature click on the link - Morning Show
Donate or Sponsor a Fundraiser
Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser
Rare Disease Day 28th Feb 2013. See www.GRDO.ie
Visit to Aras an Uachtarain
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".
Staying active delays HD
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.
