Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.
Information on HD
Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.
Annual Respite Weekend
Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.
If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly
If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.
HD Cafe Evening
Cafe evening for people impacted by HD See Invite
Light Up For HD - May 2016
HDAI join the international HD community to ask buildings to #LightItUp4HD see more. Here, buildings lighting up in purple on May 11th include: Dublin - The Mansion House, Dawson St., City Council Civic Offices, Wood Quay, The Generator Hostel, Smithfield and The Convention Centre, Dublin.
You can support the HD community by asking a building in your area to go purple and use #LightItUp4HD to share a photo or selfie on social media. Email firstname.lastname@example.org for more info
Click on HD Logo for research updates. See Dr Wild's research presentation Dublin, 2013
BBC website news reports: First gene silencing trial for HD has started
Enroll -HD www.enroll-hd.org
Dr Niall Pender and Beaumont Hospital have established an Enroll-HD site at Beaumont. This is a worldwide study for HD family members. For more info watch the Information videos below and contact the study site email : email@example.com
Enroll Study Nationwide 15/6/15 (8 mins in)
Support People with Huntington's Disease
Become a member of HDAI by returning the completed membership form with your contribution or email your contact details to firstname.lastname@example.org and click the Easy Pay option above to donate online
HD TV Features:
RTE TV's Morning Edition TV3 Ireland Am
Check out HDAI's Facebook Page
Neurological Alliance of Ireland (NAI)- Promoting Awareness
Crisis in neurology services highlighted Report on National Survey of Neurology Services 2015
HD features in video : Ireland Gets a Red Card for Neurological Care
Longford March 5th, Sept 3rd, Dublin May 7th August 6th, November 5th, Limerick April 9th, October 15th , Cork March 19th, July 2nd, October 1st, December 3rd. Contact HDAI for venue and info: 1800 393939
RESPITE Weekend and AGM June 10-12th 2016 Cuisle Roscommon
Donate or Sponsor a Fundraiser
Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser
Visit to Aras an Uachtarain
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".
Staying active delays HD
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.